Rio Dedication for Brain Aneurysm Awareness Crusade

TWO campaigners have had their Health Awareness Crusade backed by Paralympian Gold Medalist, Megan Giglia in Rio!

One of Team GB’s Gold Medalists at the Rio Paralympics is dedicating each of her Paralympics rides to individuals and their families who are currently dealing with the after effects of stroke.

Megan Giglia, who won Britain’s first gold medal at the Rio Paralympics, suffered a stroke and brain haemorrhage aged 27, due to a ruptured Brain Aneurysm.

Now Megan is flying the flag, not only for Team GB, but also for other Stroke and Brain Aneurysm Patients and their families.

On Thursday Megan dedicated her Gold Medal Victory to 10 year old Alasdair Rowan, who was diagnosed with a Brain Aneurysm/AVM.

Today Megan’s ride was dedicated to Michelle Williams and Lisa Slaymaker who have been campaigning to raise more awareness of Brain Aneurysms and Subarachnoid Haemorrhage, a less common, but often more deadly form of stroke.

Writing on her instagram page before the race, Megan said: “Tomorrow is the 500mm Time Trial Final.  It is a fast race which is over in a flash.  In that short space of time every moment counts, it can be won or lost in the blink of an eye. To me such a race symbolises how lives can be lost and changed in seconds.”

Megan continued: “I am dedicating this race to two amazing women that are on a crusade of their very own to raise more awareness about Brain Aneurysms and Subarachnoid Haemorrhages. Lisa Slaymaker and Michelle Williams (soul sisters) this one’s for you.”

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Michelle and Lisa met after Michelle’s story was published on her experience of suffering a ruptured brain aneurysm in January 2016, which led to the 47-year-old requiring life-saving Brain Surgery.
Lisa’s mother passed away suddenly in 2012 after suffering from the same condition and she contacted Michelle to praise her fighting spirit.
Since meeting just 6 months ago, the pair have become firm friends and have been working together to help raise more awareness of this life threatening neurological condition.
During Megan’s post-race TV Interview, she said; “Lisa and Michelle have both suffered at the heart of Stroke and Brain Aneurysms (a bleed on the brain) as well as members of their family and they are doing their own challenge in trying to raise more awareness, so in my eyes they deserve as much as anyone to be out here and be dedicated to.”

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Paralympian brings Campaigners Crusade to Rio!

TWO Basingstoke campaigners have had their crusade backed by a Paralympian who is set to dedicate one of her races in Rio to their cause.

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Michelle Williams and Lisa Slaymaker, the duo behind a campaign urging the Government to back a nationwide Brain Aneurysm Awareness Month, received support from Team GB Cyclist Megan Giglia, a survivor of this life threatening condition.

Megan will dedicate a race in honour of Michelle and Lisa’s Soul Sisters campaign when she takes to the Rio velodrome next week.

“Lisa and I feel overwhelmed and honoured to have the support of Megan,” Michelle told us. “It means so much to have the support and backing of anyone impacted by brain aneurysms and subarachnoid haemorrhage, but even more so to have the support of Megan because we found her whole story of survival and recovery so inspiring.”

“The fact Megan is now representing Team GB at the Paralympics is wonderful.

It is so motivational and inspiring, not only for us in our fight to raise more awareness about the condition, but also for all other brain aneurysms victims and survivors.”

Michelle added: “Megan said she would like to dedicate the 500m TT sprint to us, as she says it is such a quick race that it symbolizes how lives can be lost and changed in seconds with a ruptured Brain Aneurysm and Subarachnoid Haemorrhage.”

A ruptured Brain Aneurysm is a Life Threatening Condition, which NHS statistics show is fatal in around 60% of cases. About 3 in 5 people who suffer a subarachnoid haemorrhage die within two weeks. Half of those that survive are left with severe brain damage and disability.

Michelle and Lisa met after The Basingstoke Gazette published Michelle’s story on her experience of suffering a ruptured brain aneurysm, which led to the 47-year-old business owner requiring life-saving Brain Surgery.

Lisa’s mother passed away suddenly in 2012 after suffering from the same condition and she contacted Michelle to praise her fighting spirit.

Currently the pair are on a quest to visit each golden postbox, awarded to every gold medal winning Olympian and Paralympian at London 2012. From each Postbox they are sending letters to Politicians, Heads of NHS and Specialists in the field of Neuroscience encouraging support for their campaign.

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Megan told the Soul Sisters: “You ladies are doing an amazing thing and I will back you in anyway possible. I love the gold postbox theme and I would like to dedicate one on my rides to you and hopefully help spread the word about your mission.”

To learn more about Michelle and Lisa’s campaign visit soulsistersuk.com or  www.facebook.com/SoulSistersUK/

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Brain Aneurysm – Gold Post Box Challenge, Chiswick, London

Michelle and Lisa have visited the Chiswick Gold Post Box in their Gold Post Box Challenge, as part of their mission to raise Brain Aneurysm Awareness.

The pair have set themselves a challenge to visit every Gold Post Box in England before 25th 2016, from where they will be petitioning the Government to introduce a Brain Aneurysm Awareness Day

From here they sent a Postcards to Leading Consultant Neurologists at the Walton Centre and the Regional Neurosciences Centre, asking for their help in raising more awareness about Brain Aneurysms and Subarachnoid Haemorrhage and calling for their support in petitioning the Government to introduce a  Brain Aneurysm Awareness Day.

 

The pair met after The Basingstoke Gazette published Michelle’s story on her experience of suffering a ruptured Brain Aneurysm, which led to the 47 year old business woman requiring life-saving surgery.
Lisa’s Mother passed away in 2012, after suffering from the same condition and she contacted Michelle to praise her fighting spirit.  Since then the two girls have become firm friends and are committed to raising more awareness of this silent killer so that more lives can be saved.
If you would like to help Lisa and Michelle in their bid to raise more awareness about Brain Aneurysms and Subarachnoid Haemorrhage, please sign the petition  and help to raise important funds for research being carried out Southampton University Hospital.
If you or a family member has been affected by Brain Aneurysms andSubarachnoid Haemorrhage, please join our Gold Post Box Crusade, by visiting your own local Gold Post box and sending a letter to your MP asking for their help and support in introducing a Brain Aneurysm Awareness Day.  You can find your most local Gold Post Box here!
Please don’t forget to send your Gold Post Box Pictures and Stories to our Soul Sisters UK Facebook Page.
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Brain Aneurysm – Gold Post Box Challenge, Westminster, London

Michelle and Lisa have visited London to the Gold Post Box in Westminster in their Gold Post Box Challenge, as part of their mission to raise Brain Aneurysm Awareness.

A great day in Westminster. Thank you all for your support.

  • 60% fatality rate
  • 3 in 5 people that suffer a SAH die within 2 weeks
  • 1/2 of those that survive are left with severe brain damage and disability
  • and the remaining are left with ‘invisible brain injury’ and that affect them for the rest of their life relating to problems with certain mental functions, such as memory, planning and concentration, headaches, insomnia and extreme near-fatigue.

A new report published by the Neurological Alliance has found that GPs in England lack confidence in the primary care pathway for people with neurological conditions.

  • 85% of GPS in England are either ‘somewhat concerned’ or ‘extremely concerned’ about the time taken from referral for patients to see a consultant neurologist
  • 59% of GPs believe that the local services and systems in place in their area mean that people with neurological conditions frequently do not receive a timely diagnosis.
  • The large majority of GPs in England (84%) feel that they could benefit from further training on identifying and managing people presenting with neurological conditions.
  • Fewer than half of GPs (47%) felt confident in their ability to make an initial assessment and referral for people presenting with signs and symptoms of multiple sclerosis.

Arlene Wilkie, CEO of the Neurological Alliance, said: “It is essential that NHS England and the Department of Health respond to these findings and engage with the concerns of GPs and people living with neurological conditions. Without an effective pathway through primary care, patients will continue to suffer the consequences of undue delays to referral, diagnosis and treatment, and outcomes will continue to suffer.”

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BBC Radio Interview – BBC Radio Berkshire

Soul Sisters, Lisa and Michelle were delighted to be invited to BBC Radio Berkshire on 14th August by Presenter, Debbie McGee, to talk about their Brain Aneurysm Awareness Campaign and Gold Post Box Challenge.

 

The pair were extremely grateful to Debbie for showing such great interest in their Brain Aneurysm Awareness campaign, particularly after loosing her husband, Paul Daniels, so recently to a neurological condition.

During the interview Michelle and Lisa had the opportunity to discuss their own experiences of Brain Aneurysms and Subarachnoid Haemorrhage and the reason why they believe more awareness of the conditions and it’s sudden signs and symptoms are vital.

Please sign and share the petition to introduce a Brain Aneurysm Awareness Day. We need 100,000 signatures by 25th August 2016 for the petition to be considered for debate in parliament.

Please then share this blog post and the petition to help us raise more awareness about Brain Aneurysms and Subarachnoid Haemorrhage.

This is an extremely serious neurological condition, which NHS statistics show is fatal in around 60% of cases. About three in five people who suffer a subarachnoid haemorrhage die within two weeks and half of those who survive are left with severe brain damage and disability.

If you or a family member has been affected by this condition, please join our Gold Post Box Crusade by posting a letter to your local MP from your own most local Gold Post Box, stating why more awareness is vital.  Please then send your Gold Post Box Photos and Stories to our Soul Sisters UK Facebook Page. 

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Brain Aneurysm – Gold Post Box Challenge #11 &12, Wimbledon, London

Michelle and Lisa have visited the 11th and 12th Gold Post Boxes in their Gold Post Box Challenge, as part of their mission to raise Brain Aneurysm Awareness.

The pair have set themselves a challenge to visit every Gold Post Box in England before 25th 2016, from where they will be petitioning the Government to introduce a Brain Aneurysm Awareness Day.

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The first Gold Post Box they visited in Wimbledon, was for Tennis Champion, Andy Murray, just outside The All England Croquet and Lawn Tennis Club, before the duo moved on to the 2nd Gold Post Box in Wimbledon for Olympian Rower, Sophie Hosking.

From here they sent a Postcards to Leading Consultant Neurologists at the Walton Centre and the Regional Neurosciences Centre, asking for their help in raising more awareness about Brain Aneurysms and Subarachnoid Haemorrhage and calling for their support in petitioning the Government to introduce a  Brain Aneurysm Awareness Day.

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The pair met after The Basingstoke Gazette published Michelle’s story on her experience of suffering a ruptured Brain Aneurysm, which led to the 47 year old business woman requiring life-saving surgery.
Lisa’s Mother passed away in 2012, after suffering from the same condition and she contacted Michelle to praise her fighting spirit.  Since then the two girls have become firm friends and are committed to raising more awareness of this silent killer so that more lives can be saved.
If you would like to help Lisa and Michelle in their bid to raise more awareness about Brain Aneurysms and Subarachnoid Haemorrhage, please sign the petition  and help to raise important funds for research being carried out Southampton University Hospital.
If you or a family member has been affected by Brain Aneurysms and Subarachnoid Haemorrhage, please join our Gold Post Box Crusade, by visiting your own local Gold Post box and sending a letter to your MP asking for their help and support in introducing a Brain Aneurysm Awareness Day.  You can find your most local Gold Post Box here!
Please don’t forget to send your Gold Post Box Pictures and Stories to our Soul Sisters UK Facebook Page.
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we NEED you for Brain Aneurysm Awareness!

EVERYONE!!! Please sign and share our petition to introduce a Brain Aneurysm Awareness Day. We need 10,000 signatures by 24th August, so we haven’t got long and we NEED your help!!!

For any Survivors or people who have lost a loved one to Brain Aneurysms and Subarachnoid Haemorrhage, please meet us a the Westminster Gold Post Box in London on Sunday 7th August, 3pm, for a Publicity Day.

The address is: Tothill Street, Westminster, London, SW1H 9LH.

If you can’t meet us, please visit your own most local Gold Post Box.  From there take a photograph of yourself sending a letter to your local MP explaining your own personal experiences of Brain Aneurysms and Subarachnoid Haemorrhage and why there needs to be more awareness about this devastating life-threatening condition.

Enter your postcode at the link below to find your most local Gold Post Box: https://www.hopewiser.com/proximity-postboxes/

THEN post up your Gold Post Box Photo’s and Stories here:
https://www.facebook.com/SoulSistersUK/

Brain Aneurysm Awareness Support Day – 7th August 2016

To mark the start of the main leg of our Gold PostBox Challenge, in support of Brain Aneurysm Awareness, we invite other Brain Aneurysm Survivors and those affected by Subarachnoid Haemorrhage to meet us at the main Olympic Gold Postbox in Westminster London at 3pm on Sunday 7th August 2016.

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From here we would ask you to send a letter to your local MP outlining your own personal experience of Brain Aneurysms and Subarachnoid Haemorrhage, explaining why you believe it is important to introduce a Brain Aneurysm Awareness Day.

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We hope to meet as many Brain Aneurysm Survivors, Carers  and those that have suffered loss, to help gain much needed publicity about this devastating neurological condition.

If you are unable to meet us at the Westminster Gold Postbox at 3pm on 7th August 2016, please help support our Gold Post Box Campaign by taking a photograph at your own local Gold Post Box and sending a letter to your MP.

Please then post your Gold Post Box Photographs up on our Facebook Page with details of the reason you wish to introduce a Brain Aneurysm Awareness Day.

Please then share your post and encourage people to sign our Petition.

The address of the Westminster Gold Post Box is: Tothill Street, Westminster, London, SW1H 9LH.

Find the location of your most local Gold Post Box here!

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Brain Aneurysm – Gold Post Box Challenge #10 Portland, Dorset

Michelle and Lisa have visited the 10th Gold Post Box in their Gold Post Box Challenge, as part of their mission to raise Brain Aneurysm Awareness. This was the Gold Post Box of Helena Lucas, in Portland, Dorset.

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From here they sent a Postcard to Celebrity TV Chef, Si King, of the Hairy Bikers, who was rushed to hospital for emergency life saving treatment, after he suffered a potential life-threatening ruptured Brain Aneurysm in 2014.

The soulsisters hope that Mr King will have empathy for their cause and use his celebrity to help raise signatures for their petition to introduce a  Brain Aneurysm Awareness Day.

Whilst staying in Portland Michelle and Lisa took a short break to see some of the local sights and enjoyed exploring the breath-taking Jurassic Coastline.

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Michelle, who has been recuperating, following her Subarachnoid Haemorrhage in January 2016, has been trying to build up her fitness by walking, which she said has helped her to recover both physically and emotionally from the terrifying health scare.

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Michelle, who was previously a very fit and healthy cross-country running enthusiast, said that she suffered anxiety and panic attacks after her release from hospital, but that her love of the great outdoors and walking has greatly contributed to her recovery and mental wellbeing.

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Whilst Michelle is still struggling with a loss of cognitive processes, including deficits with short-term memory, concentration, multi-tasking and decision-making and is suffering with frequent headaches, insomnia and neuro fatigue, she says that physically she is recovering extremely well and firmly believes that frequent walks with her friend and Dog, Daisy, has greatly aided her recovery.

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If you would like to help Lisa and Michelle in their bid to raise more awareness about Brain Aneurysm and Subarachnoid Haemorrhage, please  sign the petition  and help to raise important funds for research being carried out Southampton University Hospital.

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