Soul Sisters Interview with BBC Radio Newcastle

Michelle and Lisa were interviewed on Friday 19th August by BBC Radio Newcastle during their Gold Post Box Challenge.

Please help and support Lisa & Michelle by signing the petition.

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Brain Aneurysm – Gold Post Box Challenge, Chiswick, London

Michelle and Lisa have visited the Chiswick Gold Post Box in their Gold Post Box Challenge, as part of their mission to raise Brain Aneurysm Awareness.

The pair have set themselves a challenge to visit every Gold Post Box in England before 25th 2016, from where they will be petitioning the Government to introduce a Brain Aneurysm Awareness Day

From here they sent a Postcards to Leading Consultant Neurologists at the Walton Centre and the Regional Neurosciences Centre, asking for their help in raising more awareness about Brain Aneurysms and Subarachnoid Haemorrhage and calling for their support in petitioning the Government to introduce a  Brain Aneurysm Awareness Day.

 

The pair met after The Basingstoke Gazette published Michelle’s story on her experience of suffering a ruptured Brain Aneurysm, which led to the 47 year old business woman requiring life-saving surgery.
Lisa’s Mother passed away in 2012, after suffering from the same condition and she contacted Michelle to praise her fighting spirit.  Since then the two girls have become firm friends and are committed to raising more awareness of this silent killer so that more lives can be saved.
If you would like to help Lisa and Michelle in their bid to raise more awareness about Brain Aneurysms and Subarachnoid Haemorrhage, please sign the petition  and help to raise important funds for research being carried out Southampton University Hospital.
If you or a family member has been affected by Brain Aneurysms andSubarachnoid Haemorrhage, please join our Gold Post Box Crusade, by visiting your own local Gold Post box and sending a letter to your MP asking for their help and support in introducing a Brain Aneurysm Awareness Day.  You can find your most local Gold Post Box here!
Please don’t forget to send your Gold Post Box Pictures and Stories to our Soul Sisters UK Facebook Page.
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Brain Aneurysm – Gold Post Box Challenge, Westminster, London

Michelle and Lisa have visited London to the Gold Post Box in Westminster in their Gold Post Box Challenge, as part of their mission to raise Brain Aneurysm Awareness.

A great day in Westminster. Thank you all for your support.

  • 60% fatality rate
  • 3 in 5 people that suffer a SAH die within 2 weeks
  • 1/2 of those that survive are left with severe brain damage and disability
  • and the remaining are left with ‘invisible brain injury’ and that affect them for the rest of their life relating to problems with certain mental functions, such as memory, planning and concentration, headaches, insomnia and extreme near-fatigue.

A new report published by the Neurological Alliance has found that GPs in England lack confidence in the primary care pathway for people with neurological conditions.

  • 85% of GPS in England are either ‘somewhat concerned’ or ‘extremely concerned’ about the time taken from referral for patients to see a consultant neurologist
  • 59% of GPs believe that the local services and systems in place in their area mean that people with neurological conditions frequently do not receive a timely diagnosis.
  • The large majority of GPs in England (84%) feel that they could benefit from further training on identifying and managing people presenting with neurological conditions.
  • Fewer than half of GPs (47%) felt confident in their ability to make an initial assessment and referral for people presenting with signs and symptoms of multiple sclerosis.

Arlene Wilkie, CEO of the Neurological Alliance, said: “It is essential that NHS England and the Department of Health respond to these findings and engage with the concerns of GPs and people living with neurological conditions. Without an effective pathway through primary care, patients will continue to suffer the consequences of undue delays to referral, diagnosis and treatment, and outcomes will continue to suffer.”

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BBC Radio Interview – BBC Radio Berkshire

Soul Sisters, Lisa and Michelle were delighted to be invited to BBC Radio Berkshire on 14th August by Presenter, Debbie McGee, to talk about their Brain Aneurysm Awareness Campaign and Gold Post Box Challenge.

 

The pair were extremely grateful to Debbie for showing such great interest in their Brain Aneurysm Awareness campaign, particularly after loosing her husband, Paul Daniels, so recently to a neurological condition.

During the interview Michelle and Lisa had the opportunity to discuss their own experiences of Brain Aneurysms and Subarachnoid Haemorrhage and the reason why they believe more awareness of the conditions and it’s sudden signs and symptoms are vital.

Please sign and share the petition to introduce a Brain Aneurysm Awareness Day. We need 100,000 signatures by 25th August 2016 for the petition to be considered for debate in parliament.

Please then share this blog post and the petition to help us raise more awareness about Brain Aneurysms and Subarachnoid Haemorrhage.

This is an extremely serious neurological condition, which NHS statistics show is fatal in around 60% of cases. About three in five people who suffer a subarachnoid haemorrhage die within two weeks and half of those who survive are left with severe brain damage and disability.

If you or a family member has been affected by this condition, please join our Gold Post Box Crusade by posting a letter to your local MP from your own most local Gold Post Box, stating why more awareness is vital.  Please then send your Gold Post Box Photos and Stories to our Soul Sisters UK Facebook Page. 

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Brain Aneurysm – Gold Post Box Challenge #11 &12, Wimbledon, London

Michelle and Lisa have visited the 11th and 12th Gold Post Boxes in their Gold Post Box Challenge, as part of their mission to raise Brain Aneurysm Awareness.

The pair have set themselves a challenge to visit every Gold Post Box in England before 25th 2016, from where they will be petitioning the Government to introduce a Brain Aneurysm Awareness Day.

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The first Gold Post Box they visited in Wimbledon, was for Tennis Champion, Andy Murray, just outside The All England Croquet and Lawn Tennis Club, before the duo moved on to the 2nd Gold Post Box in Wimbledon for Olympian Rower, Sophie Hosking.

From here they sent a Postcards to Leading Consultant Neurologists at the Walton Centre and the Regional Neurosciences Centre, asking for their help in raising more awareness about Brain Aneurysms and Subarachnoid Haemorrhage and calling for their support in petitioning the Government to introduce a  Brain Aneurysm Awareness Day.

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The pair met after The Basingstoke Gazette published Michelle’s story on her experience of suffering a ruptured Brain Aneurysm, which led to the 47 year old business woman requiring life-saving surgery.
Lisa’s Mother passed away in 2012, after suffering from the same condition and she contacted Michelle to praise her fighting spirit.  Since then the two girls have become firm friends and are committed to raising more awareness of this silent killer so that more lives can be saved.
If you would like to help Lisa and Michelle in their bid to raise more awareness about Brain Aneurysms and Subarachnoid Haemorrhage, please sign the petition  and help to raise important funds for research being carried out Southampton University Hospital.
If you or a family member has been affected by Brain Aneurysms and Subarachnoid Haemorrhage, please join our Gold Post Box Crusade, by visiting your own local Gold Post box and sending a letter to your MP asking for their help and support in introducing a Brain Aneurysm Awareness Day.  You can find your most local Gold Post Box here!
Please don’t forget to send your Gold Post Box Pictures and Stories to our Soul Sisters UK Facebook Page.
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Brain Aneurysm – Gold Post Box Challenge Uxbridge, Buckinghamshire

Michelle and Lisa have visited the Uxbridge Gold Post Box in their Gold Post Box Challenge, as part of their mission to raise Brain Aneurysm Awareness.

A great day in Uxbridge visiting their gold Post Box. Michelle’s friend sadly passed away due to a ruptured brain aneurysm 3 years ago. Thank you all for your support.

  • 60% fatality rate
  • 3 in 5 people that suffer a SAH die within 2 weeks
  • 1/2 of those that survive are left with severe brain damage and disability
  • and the remaining are left with ‘invisible brain injury’ and that affect them for the rest of their life relating to problems with certain mental functions, such as memory, planning and concentration, headaches, insomnia and extreme near-fatigue.

A new report published by the Neurological Alliance has found that GPs in England lack confidence in the primary care pathway for people with neurological conditions.

  • 85% of GPS in England are either ‘somewhat concerned’ or ‘extremely concerned’ about the time taken from referral for patients to see a consultant neurologist
  • 59% of GPs believe that the local services and systems in place in their area mean that people with neurological conditions frequently do not receive a timely diagnosis.
  • The large majority of GPs in England (84%) feel that they could benefit from further training on identifying and managing people presenting with neurological conditions.
  • Fewer than half of GPs (47%) felt confident in their ability to make an initial assessment and referral for people presenting with signs and symptoms of multiple sclerosis.

Arlene Wilkie, CEO of the Neurological Alliance, said: “It is essential that NHS England and the Department of Health respond to these findings and engage with the concerns of GPs and people living with neurological conditions. Without an effective pathway through primary care, patients will continue to suffer the consequences of undue delays to referral, diagnosis and treatment, and outcomes will continue to suffer.”

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we NEED you for Brain Aneurysm Awareness!

EVERYONE!!! Please sign and share our petition to introduce a Brain Aneurysm Awareness Day. We need 10,000 signatures by 24th August, so we haven’t got long and we NEED your help!!!

For any Survivors or people who have lost a loved one to Brain Aneurysms and Subarachnoid Haemorrhage, please meet us a the Westminster Gold Post Box in London on Sunday 7th August, 3pm, for a Publicity Day.

The address is: Tothill Street, Westminster, London, SW1H 9LH.

If you can’t meet us, please visit your own most local Gold Post Box.  From there take a photograph of yourself sending a letter to your local MP explaining your own personal experiences of Brain Aneurysms and Subarachnoid Haemorrhage and why there needs to be more awareness about this devastating life-threatening condition.

Enter your postcode at the link below to find your most local Gold Post Box: https://www.hopewiser.com/proximity-postboxes/

THEN post up your Gold Post Box Photo’s and Stories here:
https://www.facebook.com/SoulSistersUK/