Final Diagnosis, Brain Aneurysm!

    

547603_10150851460156636_535653468_nI was so excited to call my mum who was on holiday in her caravan down in Dorset. I wanted to tell her that I had my interview and I had a place at University to get my degree in Early Years, but she was very quiet. I asked her if she was ok, I could tell it was a struggle for her to talk but she informed me that while she was washing up, she all of a sudden got hit with a severe headache and as she walked backed to the caravan, she was walking like she was drunk. She then went on to be sick and couldn’t get up. The Caravan site was fabulous and called for a doctor to come and see my mum. The doctor arrived an examined my mum to establish a possible cause of her illness and ruled out meningitis as a cause and suggested a migraine. The doctor gave my mum an injection to cure the feeling of sickness and prescribed 15mg of codeine-phosphorous for the pain.

 

My mum and dad were forced to abandon their holiday and my mum just didn’t leave her bed when she returned home. Four days after her sudden headache which she later described as someone hitting her over the head with a baseball bat, we called for a doctor again as her condition not only did not improve, but she was very distressed and her condition just deteriorated. It was a Sunday and we were all nervous about leaving her home alone. The doctor came to the house and my mum was able to tell him about her headache, vomiting and stiff neck. The doctor agreed she needed some tests and called for an ambulance to take her. The ambulance men came in and were asking her to do some little exercises like using her hands to push against theirs. They were also concerned that she may have had a mini stoke as her eye and mouth was slanted. We were told to pack an overnight bag for her as she may have tests that day or first thing in the morning.

 

Five hours later, my mum was home. I remember asking her about her tests and she told1174966_10151526266971636_16909335_n me that they didn’t perform any tests other than check behind her eyes to which a doctor said one eye was clear but she wasn’t sure about the other eye. She was sent home with a box of 30mg codeine-phosphorous tablets for her so called migraine.

 

Two days later Tuesday 15th May 2012 my mum blacks out in her bedroom and her head hits her bedside table causing her mouth to bleed and her front tooth was now wobbly. My dad called the hospital and they told him that they could do nothing to help as she was discharged more than 24 hours ago and that he would have to start again with our doctor. While my dad is calling them, I sit with my mum who is now talking very strangely, asking for people who were no longer with us. I put her strange behaviour down to the fact she hadn’t eaten or drunk anything … maybe she is dehydrated??

 

My dad manages to get through to a doctor at our surgery and explains to him what had happened over the last week. With my dad explaining her sudden severe headache and vomiting, the doctor said “It sounds like your wife may have a bleed on the brain”. The doctor explained it would be better to not waste time by having him come to the house and to get her straight up to the hospital.

 

My dad took my mum to the hospital while I tied up loose ends with work as fortunately I was finishing early that day. My friend stayed with me while I waited for news. My dad called me at lunch time and calmly told me that my mum had just had a CT Brain Scan which revealed she did have a Bleed on the brain. I didn’t know what to say and I asked my dad what would have caused this to which he told me that my mum had a ruptured brain aneurysm which was slowly bleeding. The plan was to move her to Southampton Nerological hospital where they will coil the bleed and stop it from causing any further damage. He sounded calm and just asked me to leave my sister a message at work but not to panic.

 

1012799_10151429380271636_1912016702_nMy dad came home to get some things for my mum to take to Southampton and said there is no point in going to Basingstoke hospital as she will be transferred to Southampton soon, but luckily for me, my gut feeling was to go and sit with my mum at the hospital until the ambulance arrived. I have never been very good with hospitals but my friend offered to come with me and sit with my mum. My mum was so pleased to see me, she had this massive red mark across her forehead where the pain was just so intense that she kept rubbing her head and repeatedly told me she had a bleed on the brain and that she knew she wasn’t suffering from a migraine like they all said. She looked so happy that she was now being taken seriously after a week of being in pain and distress. I could have gone in the ambulance with her but my mum insisted I wasn’t going in there with her. She smiled at me and waved as the ambulance doors closed. I smiled and waved back and said I would see her in Southampton.

 

That memory of waving goodbye to her will stay with me forever as I was about to discover that this brain aneurysm was more serious and devastating beyond my imagination …

 

In my next blog, I will share more of mine and my mum’s journey and although the outcome was not a good one for my mum, myself and my family, I am determined to highlight the signs and symptoms so that more lives can be saved. I can’t explain to you GetAttachment (2)just how much I miss my mum. All I can say is that a piece of me went with her and I will never get over it. My mum was a caring and bubbly person who would do anything for anyone and that is why I am sharing this with you all. My mum loved to help others and as hard as it is for me to write this, it just may help save a life and my mum would want that more than anything.

A ruptured Brain Aneurysm is a life threatening condition, never ignore a severe headache. Blood is an irritant to the brain and once blood touches the brain, it causes damage and time lost is Brain loss.

We also welcome other Brain Aneurysm Survivors and anyone who has been affected by this condition, to share their stories, so that more people know about the condition, recognise the symptoms and act quickly.

SUDDEN SEVERE HEADACHE? … IF IN DOUBT, GET CHECKED OUT!

#brainaneurysm #bleedonthebrain #migraine #migrainesymptoms #severeheadaches

 

 

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16 thoughts on “Final Diagnosis, Brain Aneurysm!

  1. Thank you for sharing your story Lisa. It was brave of you to relive that all over again and I’m sorry that you and your mum had to go through it . I’m also sorry that you lost your mum but I’m sure she would be so proud of you for I am proud of you and proud to know you xxxx

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  2. Lisa, thank you for sharing your mums tragic story. It must have been very upsetting for you to relive it, but it is so important to raise awareness of the sudden onset symptoms so that more lives can be saved. My own story could have so easily had the same ending as your mums, as I too, assumed that my sudden Headache may beeen a migraine. However, I was fortunate to be seen quickly by medics that recognised that it may be a bleed on the brain and got me scanned and sent for neurosurgery in time to save me. Speed is everything, as we both now know. The family photos of you and your sister with your mum are so lovely and something to treasure. Your mum would be so proud to see you now, to see everything you’ve achieved, what a lovely, caring young woman you have become and everything you are doing to try to raise awareness in her memory. I’m so Proud to have you as my friend. Xxx

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    1. If sharing this story can help save a life, it will be totally worth it. It is thanks to reading your story in the gazette that we got to know each other and make the decision to raise awareness together. Not only are we working on this together, I have made a very special friend in you and for that I am very grateful. So thank you for everything. xxx

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    1. Thank you for your kind words. It was very difficult writing this and reading it over again, but If people can relate or it helps others, I know I’m doing the right thing. I wouldn’t want anyone to go through what my mum went thorough or their families. You and I know just how painful it is to watch someone in that condition. I really want to prevent this happening to others in the future if I can. xx

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    1. Hazel, thank you so much and I hope she is. Thank you for your comments and for sharing my story. I appreciate it more than you know. xx

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  3. Gosh this has bought back so many memories for me. This is what happened to my mum in 2012 but unfortunately the first sign of her thunder clap headache she was rushed to hospital & as they moved her she sufferd another huge bleed & went straight into a coma. I never got to see my mum as she was on holiday I miss her so much.

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    1. Rebecca, I would like to take this opportunity to say I am so sorry that you also lost your mum to this condition. Your mum and my mums stories are familiar in many ways. Like your mum, my mum also had a second bleed which I will talk about in my next blog. I was fortunate enough to meet Michelle due to her story being in the gazette and we wanted to work together to raise awareness and hopefully help people to recognise the signs and symptoms.
      I really am truly sorry for your loss. If you would like to share your story on this website, you are more than welcome.
      I did find it difficult to write but I am truly glad I did and I feel better for putting it out there. Like you, I miss my mum each and every day and I feel that as times goes on, I miss her more.

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  4. I am so sorry you lost your mum, it makes me so angry that the nhs keep missing these things.

    I was blue lighted to hospital September 2002 it was a Saturday and they were saying it was a hangover till Wednesday night when they found the blood in the spinal fluid.

    If I can help in any way please let me know because drs need to know what the signs are but also the problems we get after

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    1. Thank you so much for your comment and I’m sorry you had a rough time of it too. It would be great to have more people involved to help raise awareness. And I agree, a lot of survivors really seem to struggle after and are not sure what to expect … which is why I think it would be great to have other survivors share their stories.

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  5. Hi, it pains me to read your very sad story. I am a survivor of a ruptured brain aneurysm and it is down to the good fortune of having a GP visit at the request of my daughter. I had 2 weeks before gone to my doctors surgery and accepted a locums advice that I was suffering from sinnusitis, he did ask me to come back in a weeks time as my blood pressure was high. It did go down when I had a reading done a week later but I now understand the previous symptoms was in fact the initial bleed, things then settled down the following week only to blow up again a week later. I have another aneurysm that is to be monitored but feel so so blessed to have had the attention I did have by my doctor when coming out to see me at my daughters request. 29/4/2014 is a date that really changed my life. If I can do anything to help you please let me know. Your mum would be very proud of her girl. 💕

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    1. Hi Linda, thank you so much for your message. I’m sorry to hear about your experience but incredibly pleased you got the medical attention you needed eventually and that you are here to tell your story. Writing this was incredibly hard as I can now see where it should have been picked up, but they just kept saying she wasn’t displaying any neurological problems, and clearly there was a problem despite that. I am slowly working on the next part of our journey but just taking my time with it.
      It would be wonderful to have your help and raise awareness …and if you would like to share your story on our website, feel free to email it to me with a couple of photos and I will add it on. I think it would really help other survivors and anyone wanting to know the signs and symptoms.
      I certainly hope my mum is proud, because I’m doing this for her as well as anyone else. x

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  6. Hi Lisa, so brave of you to go through this all again to get the message out there. My mum had a SAH September 2005 was on life support for five days but never came through. Was about three years later when I thought I was going crazy as every little thing irritated me, and after seeing doctor and counselling it turned out I was going through the grieving process. I was so busy after she died sorting things out, looking after dad etc etc you know how it is that I hadn’t actually grieved for her at all. Then in May 2015 I had SAH horrific pain, was like labour pain at its worst n my head. I have another unruptured just over 4 mil at neuro tomorrow so will see how things are with that. So well done on reliving it and getting it out there and thank you x

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    1. Barbara, we are so sorry to hear about your Mum and also for the terrifying experience of suffering a SAH yourself. This condition needs so much more awareness to help save more lives? Have you been following our Gold Post Box Challenge? We really need to get stories like yours out there, to make people sit up and listen and to get some much needed help in introducing more awareness. Please could you help us by visiting your own local Gold Post Box (taking a photograph of you there) sending a letter to your local MP explaining yours and your mums story and why there needs to be more awareness about Brain Aneurysms and SAH. This would help our Awareness Campaign greatly. We are asking all victims and survivors to help us, by participating in our Gold Post Box challenge. When you have visited your local gold post box please then post your photo and story on our Soul Sisters UK facebook page. You can find our most local gold post box here:

      https://www.hopewiser.com/proximity-postboxes/

      Then please post up here:

      https://www.facebook.com/SoulSistersUK/

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